How One Mother’s Loss Sparked a Lifeline for Rare Disorder Patients With Aarya | Angles Of Mumbai .
After losing her son Aarya to Niemann–Pick C, a rare storage disorder, Shital Bhatkar founded With Aarya to ensure other families receive the support they need. In this interview, she shares her journey from caregiver to changemaker, and how her organisation raises awareness about rare disorders while providing medical aid, free meals through Don Ghas, and support for caregivers across Maharashtra.
#RareDisorders #RareDiseaseAwareness #GeneticDisorders #WithAarya #ShitalBhatkar
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